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MS and Spontaneous Remission

Copaxone This is a letter of hope to anyone who has or knows someone with multiple sclerosis. I wasn’t aware that this could happen until I witnessed it happening to someone else with MS. So yes, this is a true story.
About twelve years ago and not long after my own MS diagnosis I was volunteering at a thrift store for animal welfare on Whidbey Island in Washington State. The day I started I also found out that there was another volunteer who also had this yucky disease. And she was much worse off then I was. She described her disease as being responsible for her being blind in one eye and nearly blind in the other. She had to use braces to walk and even then it was extremely difficult. She said that she was always in pain and because of the numbness in both of her feet she hadn’t been able to feel anything in either foot for fourteen years.
We talked quite a bit about our conditions so it didn’t surprise me when she came in one day and said that when she woke up that morning she felt different. When I asked what she meant by different she couldn’t really give me an answer other then she felt different. Little did either of us realize the miracle that was about to take place.
About two weeks after our conversation she was in a complete remission. Her eye sight in both eyes had returned to 20/20. She had full feeling in both of her feet and no longer needed her braces because she could walk just fine without them.
When I asked my Neurologist about this he stated, “Yes spontaneous remission is possible, but it’s very rare, so I wouldn’t get my hopes up to much.”
I was like, are you kidding, sometimes hope is all people with MS have. And let’s put this into perspective. If MS can turn itself off almost as fast as it can come on then that means that there is some kind of a mechanism controlling it. And if we can find that switch then I could care less whether I have the disease or not as long as it stays turned off!
And this gives me tremendous hope regardless of how rare it might be!


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16 thoughts on “MS and Spontaneous Remission

  1. My son is an avid runner. After trying on the shoe Christmas morning, he said, “I love it…thanks Mom!” I asked him if it was a good shoe for running and his assessment was, “No because its too heavy, but I still like it. I can wear it when I’m not running…like when I go to my friends’ houses and stuff like that, so I still really like it.”
    ralph lauren danmark

  2. I do have another blog site that I pretty much devote to just multiple sclerosis if you are interested in that the link is:

  3. Have you ever considered publishing an e-book or guest authoring on other blogs?

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  5. I’m gone to say too my little brother, that he should also
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  6. Nice Blog, thanks for sharing this kind of information.

  7. I was searching MSN and came across this site three times this week.
    I think its Gods way of telling me what to add to my RSS reader.

  8. Nice Blog, thanks for sharing this kind of information.

  9. One more incredibly robust and effective post. I’ve been reading by way of a few of your previous
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  10. Take pleasure in the ADKs Erin. Countless incredible places to run and explore!

  11. I’m currently experiencing greater disease activity than ever. It’s scary. But I know what I focus on grows. So I’m choosing to focus on spontaneous remission. Dr. Lissa Rankin has written a book devoted to people healing. It’s called, Mind Over Medicine.
    I believe you have that woman hope. I believe in helping her feel less alone, and allowing herself to see how strong she still was, you gave her the space to spontaneously heal. Thank you for sharing this!
    Love and hope to you!!!

    • Thank you for your positive support! I also have a site that is devoted entirely to MS the address is: come and check it out if anyone would like to!

      • Sorry, I’ve let this blog go because I wanted to step away from being locally known as the face of MS… within my networking community. It wasn’t huge- but it got big enough and frequent enough that I decided to step away. I didn’t mean to ignore you! My new blog that I will be launching will be Anchored in Healing Hope. I hope to see you there too. I need to get this opened up and then I’ll respond to everyone. 🙂
        Thank you!!

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